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I
am participating in the Rett Ride Across America – a cycling event to raise awareness and funds for Rett syndrome. This cause is near to my heart and the
money raised will fuel research toward effective treatments and a cure
for Rett syndrome.
Rett syndrome is a rare neurological disorder
which becomes apparent in infancy or early childhood. It occurs in 1 in 10,000
births and primarily affects females, though it can occur in boys. The children develop normally for the first 6
to18 months and then begin to regress – or lose acquired skills. Rett syndrome
causes changes in the brain that lead to lifelong impairments, including inability
to speak, seizures, scoliosis and breathing difficulties. More than half of those affected lose the
ability to walk. Most require maximum assistance with basic daily activities.
Your donation will help fund important research
and critical family support. This cause is very important to me and I
appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to
support Rettsyndrome.org in finding a cure!


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