Welcome to Alan's Page for Team #NewDayForGray
Most of us have a figure in our lives who we admire and emulate. They teach us about the men or women we want to be, they teach us about integrity, about courage. I am proud to admit that for me this person is my son Grayson.
Every day is a struggle for Grayson. Nearly a year ago, our handsome, man-bun-wearing little cutie was diagnosed with the rare neurological disorder, Rett Syndrome. Rett is the root cause of all of Gray's health challenges. He has 10-20 seizures daily. He cannot sit on his own, he does not walk and he cannot communicate with us verbally. He has already been hospitalized more in his three years than most of us will be in a lifetime.
Grayson is also the happiest young man you will ever meet. His smile can warm you, his laugh is contagious and his eyes tell you the story of a very charming and social young man. On the days when Eva and I don’t know how we will cope with his illness, Gray seems the bravest... A little hand on the cheek or a chuckle let us know "it's okay Momma and Poppa, I am okay."
So in Gray's spirit and in his honor, I am going to embark on my own journey to raise awareness and money for a cure for Rett Syndrome. I am going to participate in the Rett Ride Across America in the Month of October.
Rett syndrome is a rare neurological disorder which becomes apparent in infancy or early childhood. It occurs in 1 in 10,000 births and primarily affects females, though it can occur in boys. The children develop normally for the first 6 to18 months and then begin to regress – or lose acquired skills. Rett syndrome causes changes in the brain that lead to lifelong impairments, including inability to speak, seizures, scoliosis and breathing difficulties. More than half of those affected lose the ability to walk. Most require maximum assistance with basic daily activities.
Your donation will help fund important research and critical family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure!
Donations for Alan Shukovsky
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