Welcome to the Personal Fundraising Page of Lloyd Maisonville
Well I am only at 20% of my goal. Could use some help on this one friends. Just about 20 days before the start of the event. Any help reaching my goal would be appreciated.
I have a cycling friend that I met a couple of years ago and I came to find out that he has a daughter with Rett Syndrome. I had no idea what it was. Well I did a little research and found out that Rett syndrome is a rare neurological disorder which becomes apparent in infancy or early childhood. It occurs in 1 in 10,000 births and primarily affects females, though it can occur in boys. The children develop normally for the first 6 to18 months and then begin to regress – or lose acquired skills. Rett syndrome causes changes in the brain that lead to lifelong impairments, including inability to speak, seizures, scoliosis and breathing difficulties. More than half of those affected lose the ability to walk. Most require maximum assistance with basic daily activities.
I can only imagine how this affects the lives of these children and their care givers. I decdied to help my friend, KC Byers, by raising money and joining him this year on the Gulf Coast Endurance Ride. The money raised will allow essential research of effective treatments and a cure for Rett syndrome to continue.
Unlike many other Charity Type Organizations over 91% of the money raised goes towards finding the cure.
Your donation will help fund both important research and critical family support. I would appreciate your help.
Please donate to my efforts to support KC and the Rettsyndrome.org in finding a cure! No amount is too small.
Donations for Lloyd Maisonville
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