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I am participating in the Rett Ride Across America – a cycling ride that will take place in October 2020 from Biloxi, MS to Pensacola, FL, a total of 114 miles. The money raised will allow essential research of effective treatments and a cure for Rett syndrome to continue.
Rett syndrome is a rare neurological disorder which becomes apparent in infancy or early childhood. It occurs in 1 in 10,000 births and primarily affects females, though it can occur in boys. The children develop normally for the first 6 to18 months and then begin to regress – or lose acquired skills. Rett syndrome causes changes in the brain that lead to lifelong impairments, including inability to speak, seizures, scoliosis and breathing difficulties. More than half of those affected lose the ability to walk. Most require maximum assistance with basic daily activities.
Your donation will help fund important research and critical family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure!