Welcome to the Rett Syndrome Fundraising Page of Rosa Barbosa
I am participating in the Rett Ride Across America cycling ride in support of my friend KC Byers and his daughter Katelyn. Katelyn has Rett Syndrome and KC Byers has supported the Rett Syndrome Organization for many years. He has participated in several Rett Ride Across America cycling rides including the cross-country ride from San Diego, California to Jacksonville, Florida. The Rett Ride Across America is a cycling event to raise awareness and funds for Rett syndrome. This cause is near to my heart and the money raised will allow essential research of effective treatments and a cure for Rett syndrome.
Rett syndrome is a rare neurological disorder which becomes apparent in infancy or early childhood. It occurs in 1 in 10,000 births and primarily affects females, though it can occur in boys. The children develop normally for the first 6 to 18 months and then begin to regress – or lose acquired skills. Rett syndrome causes changes in the brain that lead to lifelong impairments, including inability to speak, seizures, scoliosis and breathing difficulties. More than half of those affected lose the ability to walk. Most require maximum assistance with basic daily activities.
Your donation will help fund important research and critical family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure!