Amanda's Rett Riders!
My sister Amanda has been living with Rett syndrome for 35 years. Growing up with a disability in a small town provided some challenges but through the strength of my parents and family and the togetherness of my community Amanda has thrived. She can't talk but she will let you know how she is feeling, her laugh is infectious, and she has been known to give you a kiss if you ask right. If she REALLY likes you she will sit on you…unless you’re sitting in her spot at which point she’ll just sit on you because well, you're in her spot. She like to take rides and she loves a party!
I, along with my cycling group Bike Monday Bros have created “Amanda’s Rett Riders” and we are participating in the Rett Ride Across America – a cycling event to raise awareness and funds for Rett syndrome. Rett syndrome is a rare neurological disorder which becomes apparent in infancy or early childhood. It occurs in 1 in 10,000births and primarily affects females, though it can occur in boys. The children develop normally for the first 6 to 18 months and then begin to regress – or lose acquired skills. Rett syndrome causes changes in the brain that lead to lifelong impairments, including inability to speak, seizures, scoliosis and breathing difficulties. More than half of those affected lose the ability to walk. Most require maximum assistance with basic daily activities.
Your donation will help fund important research and critical family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join “Amanda’s Rett Riders” on October 3, 2020 in historic Lawrenceville, VA for a community ride (bring your mask) or donate to my efforts to support Rettsyndrome.org in finding a cure! Or do both! They could use the money and Amanda could always use some more "Rett Riders"!
JohnJason "J.J." Cecil (Amanda's Big Brother)
Donations for JohnJason Cecil
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