We are walking in the Strollathon, Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This casual stroll has a fun and energetic festival atmosphere. We stroll for Lillian Knutson. She was diagnosed with Rett Syndrome at age 2.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Lilly deals with many of the impairments known to Rett Syndrome. She does not speak any words, but rather uses eyegaze to communicate. She suffers from seizures, and has never had the ability to walk.
Your donation will help fund important research and family support. This cause is very important to us and we appreciate your help as we fight for a cure for Rett syndrome!
Please join us or donate to our efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!