Welcome to the Strollathon page for Team Jade-alicious!
The Razzano family is walking in the 14th annual Portland Strollathon, Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This casual stroll has a fun and energetic festival atmosphere. Madison High School's drumline will be joining us again to lead the way! Jade turned 16 this year so we are making new shirts to reflect her sassy self - contact Joey to get your new team shirt at email@example.com and to let us know if you can join us for the stroll.
There's no easy way to say this - Rett syndrome sucks! It's a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities. Jade has a great sense of humor and is a joy to be around.
In addition to being TAX-DEDUCTIBLE, your donation will help fund important research and family support. This cause is very important to us and we appreciate your help as we fight for a cure for Rett syndrome! Will you help us raise funds to help cure this awful disease??
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope! Give until it feels good!