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In honor of our daughter Sarah, we are participating in the 2020 virtual Strollathon, Rettsyndrome.org’s signature fundraising and awareness event. Usually this event is a gathering of hundreds of family and friends whose lives that been touched by RS. This year's virtual event will look a little different but the hope is the same - to raise money to continue the fight to find treatments and a cure for RS.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Your donation will help fund important research and family support. This cause is very important to our family and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me in the walk or donate to my efforts to support Rettsyndrome.org! The progress of the reasearch is truly amazing. Your help is our hope!
Donations for Susan Murakami
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