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Welcome to Lily and Daddy's Fundrasing Page !!!

Donate Now

Thank you for visiting Lily and Daddy's Strollathon page! And thanks to all of our wonderful family and friends for your generous support every year. You help make us one of the top 10 fundraising Strollathon teams in the nation every year.  We are humbles and strengthen by your friendship and support.


We are going are participating in 12th Annual Florida Strollathon on 11/13.  Rettsyndrome.org’s signature fundraising and awareness event to raise money for essential research of effective treatments and to find a cure for Rett syndrome. Last year in our Virtual 2020 Strollathon. Lily Warrior contributed over $31,000.


This year’s event will be held Saturday, November 13th, 2021 starting at 11:30 am.  Please register and join us at the 2nd annual virtual edition - Florida Strollathon from the safety of your home with your angels, family and bubble friends!

 Imagine having a beautiful little girl who develops normally for almost 2 years... talking, playing with toys & books, finger-feeding herself, etc. only to regress and lose all her verbal, social and fine motor skills in a matter of months. All your hopes & dreams of having a normal, healthy daughter are suddenly dashed as you are told she has Rett Syndrome.


Rett Syndrome is a genetic neurological disorder that is not normally inherited. It is essentially a new mutation each time it occurs and becomes apparent after 6-18 months of early normal development. Every child with Rett Syndrome is different and has a unique combination of issues, but the resulting regression leads to lifelong impairments, including lost speech and purposeful use of their hands, seizures, scoliosis, breathing problems, sleep disturbances, anxiety, feeding tubes, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities for the rest of their lives.

Sadly, the above is one of the better outcomes that can be expected, as too many of our young girls and boys earn their wings to heaven each year. The past couple of years have been especially hard with so many lost, including the passing of one of our own beautiful, special girls from Florida, Skylar Proffitt (16).


Rett Syndrome affects primarily females (there are rare cases of males with Rett Syndrome), and its symptoms are devastating. Imagine the symptoms of autism, cerebral palsy, epilepsy and anxiety disorder affecting one child who cannot speak… this is Rett Syndrome!


But there is also great hope. With $49M invested to date in research to find a cure, 32 active research studies and several ongoing clinical trials, tremendous progress is being made. Rett Syndrome has been shown to be reversible in a lab setting with mice, and scientists have since been exploring many avenues to make this a reality for Lily and other girls and boys.


Our daughter Lily,  25 this month, was diagnosed with Rett Syndrome when she was 2 years old. We had just brought her from China and moved to Florida a year earlier. Most of our friends and support was in Georgia and we struggled when we were told our daughter would never talk or even have any expressive or receptive language; told that she had a high probablity of passing before she turned 10. Those were very difficult times for us but having an organization like Rettsydrome.org really helped us get through that rough period by educating and supporting us, and by simply letting us know that we were not alone! Rettsyndrome.org is contributing to research scientists around the world that have made incredible progress--first, in finding the cause of Rett Syndrome, and hopefully soon in developing a cure.

We are certain that a cure will happen in Lily's lifetime, but not without the generous support of people like you. You can save her and thousands of other girls and boys around the world.


Time is of the essence. Please donate today to help Lily and the many other girls and boys living with this devastating disorder. No amount is too small. Your support will mean so much to us. We appreciate your time, consideration and help as we fight for a cure for Rett syndrome. Your help is our hope! Thank You!


*Questions/problems donating, please call Henry at any time: 561-889-5610 

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Lily's Warriors
Achievements
TeamRaiser Achievement Badge
$1000 Milestone
Raised the amount of money defined for this milestone
TeamRaiser Achievement Badge
Personal Gift
Has made a donation to this event
Personal Progress:
of Goal
$18,378 Raised
$21,000.00
Fundraising Honor Roll
Alex Vamosi
$260
Andy Nish
$104
Anonymous
$104
Anonymous
$104
Anonymous
$104
Anonymous
$100
Anonymous
$50
Anonymous
$26
Anonymous
$25
Ava Allocco
$25
Barfield
$52
Barnie & Carlene Walker
$156
Bev Ladda & family
$26
Bob Keimer
Caroline Melton
Charles Bryant
$104
Christopher Durie
$26
Clem and Bev Yoder
$104
Cory & Donna Klerk
$52
David, Robin and Molly Paris
$520
Debbie Carstens
$52
Diana Siebert
$52
Donna, Tom and Lauren
$100
Enriquetta & Juan Perez
$1,000
Fengkun & Ming
$1,000
Gail & Alyssa Holley
$52
Genie & Pete Chamberlin
$104
Guillermo Perez
$520
In memory of Aurora Dobbs
$104
Ivette Helal
Jim Hatfield
Jimmy and Michelle Jarrard
$104
Joan and Jim Wiggenhorn
$52
Jon & Nicole Strombom
$104
Jose Carlos Y Fatima Cecchi
$3,017
Julianne Espinosa & Family - Go Team Lily's Warriors!
$104
Linda Hammett Ory
$1,000
Louise and George Rodriguez
$104
LuAnn Bean Mangold
$100
Lynne & Billy Mims
$52
Malinda and Rodd Newcombe
$100
Mark and Paula Garlen
$52
Mary & James Clamons
$1,000
Michael and Joyce Bivens
$26
Mike & Marilyn
$500
Mike S.
$104
Missy and Becki Chapman
$104
Monica Baloga
$52
Patricia A. Bouchard
$52
Pere Family Match - Generous Friends & M'Ville Family Thank You!
$4,000
Randy Scott
$100
Reed Family
$104
Richard & Meghan Klerk
$104
Ronald Young
$500
Ruth Sanderson
$52
Scott & Jill
$104
Stan & Diane Ward
$100
Susan and Dave Popelka
$25
Sydney Bleich and Family
$25
Teresa McAree
$50
Theodore R Richardson
$500
Tom S.
$260
Uncle Bill
$50
Vince Lamb
$100
  • About
  • Donations

Comments

Donations for Henry Perez

DONORS
Alex Vamosi
$260
Andy Nish
$104
Anonymous
$104
Anonymous
$104
Anonymous
$104
Anonymous
$100
Anonymous
$50
Anonymous
$26
Anonymous
$25
Ava Allocco
$25
Barfield
$52
Barnie & Carlene Walker
$156
Bev Ladda & family
$26
Bob Keimer
Caroline Melton
Charles Bryant
$104
Christopher Durie
$26
Clem and Bev Yoder
$104
Cory & Donna Klerk
$52
David, Robin and Molly Paris
$520
Debbie Carstens
$52
Diana Siebert
$52
Donna, Tom and Lauren
$100
Enriquetta & Juan Perez
$1,000
Fengkun & Ming
$1,000
Gail & Alyssa Holley
$52
Genie & Pete Chamberlin
$104
Guillermo Perez
$520
In memory of Aurora Dobbs
$104
Ivette Helal
Jim Hatfield
Jimmy and Michelle Jarrard
$104
Joan and Jim Wiggenhorn
$52
Jon & Nicole Strombom
$104
Jose Carlos Y Fatima Cecchi
$3,017
Julianne Espinosa & Family - Go Team Lily's Warriors!
$104
Linda Hammett Ory
$1,000
Louise and George Rodriguez
$104
LuAnn Bean Mangold
$100
Lynne & Billy Mims
$52
Malinda and Rodd Newcombe
$100
Mark and Paula Garlen
$52
Mary & James Clamons
$1,000
Michael and Joyce Bivens
$26
Mike & Marilyn
$500
Mike S.
$104
Missy and Becki Chapman
$104
Monica Baloga
$52
Patricia A. Bouchard
$52
Pere Family Match - Generous Friends & M'Ville Family Thank You!
$4,000
Randy Scott
$100
Reed Family
$104
Richard & Meghan Klerk
$104
Ronald Young
$500
Ruth Sanderson
$52
Scott & Jill
$104
Stan & Diane Ward
$100
Susan and Dave Popelka
$25
Sydney Bleich and Family
$25
Teresa McAree
$50
Theodore R Richardson
$500
Tom S.
$260
Uncle Bill
$50
Vince Lamb
$100
DONORS
Alex Vamosi
1 donations
Andy Nish
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Ava Allocco
1 donations
Barfield
1 donations
Barnie & Carlene Walker
1 donations
Bev Ladda & family
1 donations
Bob Keimer
Caroline Melton
Charles Bryant
1 donations
Christopher Durie
1 donations
Clem and Bev Yoder
1 donations
Cory & Donna Klerk
1 donations
David, Robin and Molly Paris
1 donations
Debbie Carstens
1 donations
Diana Siebert
1 donations
Donna, Tom and Lauren
1 donations
Enriquetta & Juan Perez
1 donations
Fengkun & Ming
1 donations
Gail & Alyssa Holley
1 donations
Genie & Pete Chamberlin
1 donations
Guillermo Perez
1 donations
In memory of Aurora Dobbs
1 donations
Ivette Helal
Jim Hatfield
Jimmy and Michelle Jarrard
1 donations
Joan and Jim Wiggenhorn
1 donations
Jon & Nicole Strombom
1 donations
Jose Carlos Y Fatima Cecchi
1 donations
Julianne Espinosa & Family - Go Team Lily's Warriors!
1 donations
Linda Hammett Ory
1 donations
Louise and George Rodriguez
1 donations
LuAnn Bean Mangold
1 donations
Lynne & Billy Mims
1 donations
Malinda and Rodd Newcombe
1 donations
Mark and Paula Garlen
1 donations
Mary & James Clamons
1 donations
Michael and Joyce Bivens
1 donations
Mike & Marilyn
1 donations
Mike S.
1 donations
Missy and Becki Chapman
1 donations
Monica Baloga
1 donations
Patricia A. Bouchard
1 donations
Pere Family Match - Generous Friends & M'Ville Family Thank You!
1 donations
Randy Scott
1 donations
Reed Family
1 donations
Richard & Meghan Klerk
1 donations
Ronald Young
1 donations
Ruth Sanderson
1 donations
Scott & Jill
1 donations
Stan & Diane Ward
1 donations
Susan and Dave Popelka
1 donations
Sydney Bleich and Family
1 donations
Teresa McAree
1 donations
Theodore R Richardson
1 donations
Tom S.
1 donations
Uncle Bill
1 donations
Vince Lamb
1 donations

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