Welcome to Team Sophie
Grab your purple shirt and join Team Sophie on Saturday, May 4, 2019 at the 12th Annual St. Louis Stroll at the JCC-Creve Couer, 2 Millstone Campus Dr! The festiviites begin at 9am. At 10am we will begin announcements and then begin our Stroll! Fredbird will be making an appearance, as well as Silly Jilly the balloon artist! There will be lots of snacks and refreshments and Kona Ice will be there after the Stroll! Please join us!!
Help us celebrate and honor the girls, boys and women living with Rett Syndrome and join in the movement to find a cure and better treatments for Rett Syndrome! Sophie is a smart, loving, amazing 14-year old living with this cruel disorder! She handles things with more grace than most! We know she deserves the chance to have improved treatments for her symptoms and ultimately a cure for this life-changing disorder! We continue to raise money to keep moving in that direction!
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Your donation will help fund important research and family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join Team Sophie or donate to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!
Donations for Amy Kreher
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