Welcome to my page for Tiffanie!
I am excited to chair the 2nd Annual South Carolina Strollathon again this year in memory of my daughter, Tiffanie. Please help me reach my goal to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This casual stroll has a fun and energetic festival atmosphere. As of now, we are planning to gather in person this October but will keep you updated if things change due to Covid-19.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Your donation will help fund important research and family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support IRSF in finding a cure! Your help is our hope!
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