Welcome to HALEY'S HOPE
Haley has few words, difficulty making her hands work, and after recently developing a movement disorder on top of all the complications of Rett Syndrome, she cannot stand or walk independently even with her walker. She communicates with her eyes, pictures, gestures, or her NovaChat. Seizures, motor planning difficulties, scoliosis, and balance issues affect her every effort all day long. Haley has Rett syndrome. There is NO cure for this devastating disease...YET!!! Despite Haley's daily hardships and her brain and body plaguing her every movement, her infectious smile and her contagious giggle warm the hearts of many. The challenges she has faced the last two and a half years have taken away many of those smiles and giggles. We are desperate to see their return. Haley, her family, and her friends are determined to help propel research in the right direction.
I am Co-Chairing and walking in the Strollathon, Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This casual stroll has a fun and energetic festival atmosphere.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Your donation will help fund important research and family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!
Donations for Jacy Horst
If you think this page contains objectionable content, please inform the system administrator.