Strolling for Alice and 350,000 others with Rett
Dear Family and friends,
We are walking in the Portland Strollathon this year to raise awareness, show our support, and fundraise for Rettsyndrome.org (RSO).
After Alice’s diagnosis in 2018, RSO immediately connected us with other families in our area who also share this journey with Rett. Throughout those initial months, we met several families in person, received multiple phone calls and emails of support, ears who would listen to me cry, shared stories, and offer whatever it was we needed that day. They are a gift. Not only do they offer this type of emotional support, but they also raise money for essential research for effective treatments and they strive to find a cure for Rett syndrome. The Strollathon is their main fundraiser of the year. It is a fun, casual stroll in an energetic festival atmosphere!
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of initial typical development. The resulting regression leads to lifelong impairments, including lost speech, hand use, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with all basic daily activities.
Your donation will help fund important research and family support. This cause is very close to our hearts and we appreciate your help as we fight for a cure for Rett syndrome!
We would love to have you join us on the walk and/or donate to our efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!
Donations for Kelsey Chu
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