We are happy to have you all be a part of Team Emmazing again this year!
As many of you know, Emma was diagnosed with Rett Syndrome on May 08, 2019. Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities. Emma did start having seizures in May 2021, but we are very thankful that they are very well controlled with medication.
We hope that you can join our team this year for the in person stroll to support this great cause. If you are unable to participate in the walk, please consider a donation in support of our sweet daughter Emma.
Your donation will help fund important research and family support. This cause is very important to me and we appreciate your help as we fight for a cure for Rett syndrome!
The Black Family
Donations for Jill Black
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