Welcome to Keely's Wheelies Rett Syndrome Strollathon Fundraiser!
I am walking in the Strollathon, Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This casual stroll has a fun and energetic festival atmosphere.
Rett syndrome is a devastating genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, loss of purposeful hand movement, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities. Rett syndrome creates a life where someone is essentially “trapped” inside their body. They are fully aware of everything around them and can understand and learn like anyone else; but the communication coming from their brain to the rest of their body gets lost:(.
Your donation will help fund important research and family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!
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