Clare Smiles for a Cure
I am walking in the Strollathon, Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This casual stroll has a fun and energetic festival atmosphere.
As many of you may remember, a year ago May, my niece, Clare was diagnosed with Retts Syndrome. These fundraisers assist in setting up drug trials and gene therapy to move forward in finding a cure for this very degenerative disorder. Our family is pushing to raise $20,000 so that one day there will be a cure for Clare and all those children struggling with Retts. A way to reverse the damage and changes in Clare's brain. a way to allow her to thrive and flourish and be able to do all the things she's ever wanted to. It's so Brendan and Allie, and all those parents out there, can watch their babies have a long and Healthy life.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Your donation will help fund important research and family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!
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