Please join us, or help support the efforts, by walking in the Strollathon, Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This casual stroll has a fun and energetic festival atmosphere.
As you have all heard from us, Clara was diagnosed with Rett syndrome on Ocotober 9, 2018. Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
We hope you can join our group of Crusaders for our first year walking in support of this great cause, and if you cannot please consider a donation in support of the group or a team member.
Your donation will help fund important research and family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!