10th Annual Florida Strollathon

Lily's Warriors

Thank you for visiting Lily Warrior's fundraising page! And thanks to all of our wonderful family and friends for your generous support every year. You help make us one of the top 10 fundraising Strollathon teams in the nation every year. We are honored to have your support!


We are going to try and do it again this year for the 10th Annual Florida Strollathon, Rettsyndrome.org’s signature fundraising and awareness event to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This year’s event will be held Saturday, November 2nd, 2019, at the Space Coast Field of Dreams in West Melbourne, FL.


Imagine having a beautiful little girl who develops normally for almost 2 years... talking, playing with toys & books, finger-feeding herself, etc. only to regress and lose all her verbal, social and fine motor skills in a matter of months. All your hopes & dreams of having a normal, healthy daughter are suddenly dashed as you are told she has Rett Syndrome.


Rett Syndrome is a genetic neurological disorder that is not normally inherited. It is essentially a new mutation each time it occurs and becomes apparent after 6-18 months of early normal development. Every child with Rett Syndrome is different and has a unique combination of issues, but the resulting regression leads to lifelong impairments, including lost speech and purposeful use of their hands, seizures, scoliosis, breathing problems, sleep disturbances, anxiety, feeding tubes, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities for the rest of their lives.

Sadly, the above is one of the better outcomes that can be expected, as too many of our young girls and boys earn their wings to heaven each year. The past couple of years have been especially hard with so many lost, including the passing of one of our own beautiful, special girls from Florida, Skylar Proffitt (16).


Rett Syndrome affects primarily females (there are rare cases of males with Rett Syndrome), and its symptoms are devastating. Imagine the symptoms of autism, cerebral palsy, epilepsy and anxiety disorder affecting one child who cannot speak… this is Rett Syndrome!


But there is also great hope. With $49M invested to date in research to find a cure, 32 active research studies and several ongoing clinical trials, tremendous progress is being made. Rett Syndrome has been shown to be reversible in a lab setting with mice, and scientists have since been exploring many avenues to make this a reality for Lily and other girls and boys.


Our daughter Lily (soon years old) was diagnosed with Rett Syndrome when she was 2 years old. We had just brought her from China and moved to Florida a year earlier. Most of our friends and support was in Georgia and we struggled when we were told our daughter would never talk or even have any expressive or receptive language; told that she had a high probablity of passing before she turned 10. Those were very difficult times for us but having an organization like Rettsydrome.org really helped us get through that rough period by educating and supporting us, and by simply letting us know that we were not alone! Rettsyndrome.org is contributing to research scientists around the world that have made incredible progress--first, in finding the cause of Rett Syndrome, and hopefully soon in developing a cure.

We are certain that a cure will happen in Lily's lifetime, but not without the generous support of people like you. You can save her and thousands of other girls and boys around the world.


Time is of the essence. Please donate today to help Lily and the many other girls and boys living with this devastating disorder. No amount is too small. Your support will mean so much to us. We appreciate your time, consideration and help as we fight for a cure for Rett syndrome. Your help is our hope! Thank You!


*Questions/problems donating, please call Henry at any time: 561-889-5610 

View More

Comments

Donations for Lily's Warriors

Donation Amounts
Ace Hardgoods Family
Alex & Robyn Kurkin
$200
Alex Allocco
$100
Amelia Gowdy
Amy Brown
$104
Amy Siama
Ana and Kyle Jeffries
$26
Anabella Allocco
$100
Andrea Etkie
$52
Ann
$50
Annette Needle & Peter Meyersohn
$100
Anonymous
$1,000
Anonymous
$260
Anonymous
$260
Anonymous
$104
Anonymous
$104
Anonymous
$104
Anonymous
Anonymous
Anonymous
$52
Anonymous
$50
Anonymous
$37
Anonymous
Anonymous
$26
Anonymous
Anonymous
$25
Anonymous
$25
Aunt Brenda
$50
Barbara & David Huggins
$200
Barbara Needle & David Goldman
$100
BEATRIZ GAMBACH
$104
Bela barnes
$36
Berenson Family
BERGMAN JACLYN
$50
BERNARD SHUSTER
$180
Bernheim primos
$100
Bertha Ginzburg
$100
Bill Underwood
$50
Bondar Family
$187
Brian and Darrah Gilderman
$52
Burstein Family
Burt & Pam Srebrenik
$104
Carlen & Bob
$52
Carmen & Manuel Villamanan
$250
Carmen and Jay Leonard
$100
Carol Suchlicki
$52
Cila & Salomon Gold
$200
Clara & Isaac Raijman
$50
Coach Ray
$100
Daisy Adouth
$150
Dana Goldstein & Family
$180
Daniel Amanda Lily and Jacob Goldstein
David and Robin Paris
$520
Dawn Enterprises, LLC
$200
Debbie and Maudy Rotbart
$104
Diana & Larry
$100
Donna and Steve Feig
$500
Doroty Rafferty
$26
Eliza Weber
$520
Eloisa & Santiago Morales
$100
Elsa & Abraham Gotman
$100
Emma
$26
Eti Ben-Shalom
$104
Fanny Hanono
$200
Fanny Seinuk
$100
George & Nicole Kovacs
$104
George Feldenkreis
$180
Goldenberg Family
$374
Gunner and Britta DeLay
$52
Harvey & Debbie Friedman
$52
hilda peljovich
$100
Howard and Simone Baikovitz
Jackie Chariff
$1,000
Janine Gold
Jennifer, Eric, and Eli Petersen
Joanna Hoffman
$36
Jodi Bruce
Karine Bigio
$104
Karla Dascal
$1,111
Katie Crespin
$500
Kelly Gaston Pennebaker
$52
Kristen Guskovict
$52
Lanes Family
$520
Laurie L Taylor
$25
Lebwohl family
Lee Solomon
Lily & Perez Family
$115
Lily Libhaber
$36
Lisa & David Weiner
$104
LIzette and Josh Weingard & Family
$104
Lizzy Dascal Spector
$852
Mario & Polita Chyzyk
$150
Mark and Amy Mollohan
$26
Marlene Chavin
$100
Marta Olchyk
$36
Masha & Stephen Phillips
$50
Melissa, Matt & Julia
$104
Merchandise
$614
Michael & Silvia Rotbart
Michele and Mark Stein
Miriam & Frank Rudman
$72
miriam garmizo & family
$500
Miriam Weintraub & family
$104
Misty & Troy Anderson
$20
mitrani family
$360
molly and ken doersch
$100
Mr. Anonymous Anonymous
$100,000
Mr. Michael Glinsky
$50
Mr. Orit Osman
$25
Mr. Ralph Mizraji
Mrs. Julie C Gibson
Mrs. Laurie Sutherlin
$250
Mrs. Natalia Magnorsky
$100
Ms. Ida Kabak
$52
Naile & Felipe Kreiezmar
$18
Naomi, Jared, Joseph & Rae Bernheim
$104
Nessy & Neil Fausz
$976
Pam Werner
$52
Patty Donohue
$50
Rabbi and Judy Pearlson
Rafael & Rebeca Kravec
$500
Raquel Grosfeld
$200
Ray Parker/ Joe Solesky
$1,040
Rebeca & Jack Delaster
$200
Rebecca Zimmerman
$26
Reesa, Alexa & Riley Greenstein
$200
Regina and Ted Berman
$104
Rita & Saul Srebnick
$50
Rita & Troy Mollohan
$20
Roberto and Laurie
$104
Rodney Smith
$100
Ronald L Rowton
$156
Rosa & Sergio Zelcer
$50
Rosita Rok
$200
Rubens Family
$104
Ruth Srebrenik
$100
Salver Family
$100
Sandra, Rob, Emily and Abigail
$36
sara jove
$104
Sara, Dan & Aunt Val
$100
Sarita Rozencwaig
$50
Saul and Beth Kravec
Sheryl, Adam, Ross, Warren and Elinor
$125
Silent Auction
$225
Sima & Abraham Baikovitz
$100
Stephen R Schaffzin
$26
Stern Family
$100
Supporter of Teams Perez & Proffitt
$1,000
Suzette and Michael Fisher
$374
Suzy and Jordan Linn
$52
Sydney Bleich
Tal Levinson
$36
Tania & Isreal Lapciuc
$180
Tania & Robert Bassan
$104
The Adouth family
$100
The Bernstein family
$37
The Sobol Family
$104
The Weisburds
The wittels family
$104
Venice family
$250
Number of Donations
Ace Hardgoods Family
Alex & Robyn Kurkin
1 donations
Alex Allocco
1 donations
Amelia Gowdy
Amy Brown
1 donations
Amy Siama
Ana and Kyle Jeffries
1 donations
Anabella Allocco
1 donations
Andrea Etkie
1 donations
Ann
1 donations
Annette Needle & Peter Meyersohn
1 donations
Anonymous
1 donations
Anonymous
Anonymous
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
Anonymous
1 donations
Anonymous
1 donations
Anonymous
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Anonymous
1 donations
Aunt Brenda
1 donations
Barbara & David Huggins
1 donations
Barbara Needle & David Goldman
1 donations
BEATRIZ GAMBACH
1 donations
Bela barnes
1 donations
Berenson Family
BERGMAN JACLYN
1 donations
BERNARD SHUSTER
1 donations
Bernheim primos
1 donations
Bertha Ginzburg
1 donations
Bill Underwood
1 donations
Bondar Family
1 donations
Brian and Darrah Gilderman
1 donations
Burstein Family
Burt & Pam Srebrenik
1 donations
Carlen & Bob
1 donations
Carmen & Manuel Villamanan
1 donations
Carmen and Jay Leonard
1 donations
Carol Suchlicki
1 donations
Cila & Salomon Gold
1 donations
Clara & Isaac Raijman
1 donations
Coach Ray
1 donations
Daisy Adouth
1 donations
Dana Goldstein & Family
1 donations
Daniel Amanda Lily and Jacob Goldstein
David and Robin Paris
1 donations
Dawn Enterprises, LLC
1 donations
Debbie and Maudy Rotbart
1 donations
Diana & Larry
1 donations
Donna and Steve Feig
1 donations
Doroty Rafferty
1 donations
Eliza Weber
1 donations
Eloisa & Santiago Morales
1 donations
Elsa & Abraham Gotman
1 donations
Emma
1 donations
Eti Ben-Shalom
1 donations
Fanny Hanono
1 donations
Fanny Seinuk
1 donations
George & Nicole Kovacs
1 donations
George Feldenkreis
1 donations
Goldenberg Family
1 donations
Gunner and Britta DeLay
1 donations
Harvey & Debbie Friedman
1 donations
hilda peljovich
1 donations
Howard and Simone Baikovitz
Jackie Chariff
1 donations
Janine Gold
Jennifer, Eric, and Eli Petersen
Joanna Hoffman
1 donations
Jodi Bruce
Karine Bigio
1 donations
Karla Dascal
1 donations
Katie Crespin
1 donations
Kelly Gaston Pennebaker
1 donations
Kristen Guskovict
1 donations
Lanes Family
1 donations
Laurie L Taylor
1 donations
Lebwohl family
Lee Solomon
Lily & Perez Family
1 donations
Lily Libhaber
1 donations
Lisa & David Weiner
1 donations
LIzette and Josh Weingard & Family
1 donations
Lizzy Dascal Spector
1 donations
Mario & Polita Chyzyk
1 donations
Mark and Amy Mollohan
1 donations
Marlene Chavin
1 donations
Marta Olchyk
1 donations
Masha & Stephen Phillips
1 donations
Melissa, Matt & Julia
1 donations
Merchandise
2 donations
Michael & Silvia Rotbart
Michele and Mark Stein
Miriam & Frank Rudman
1 donations
miriam garmizo & family
1 donations
Miriam Weintraub & family
1 donations
Misty & Troy Anderson
1 donations
mitrani family
1 donations
molly and ken doersch
1 donations
Mr. Anonymous Anonymous
1 donations
Mr. Michael Glinsky
1 donations
Mr. Orit Osman
1 donations
Mr. Ralph Mizraji
Mrs. Julie C Gibson
Mrs. Laurie Sutherlin
1 donations
Mrs. Natalia Magnorsky
1 donations
Ms. Ida Kabak
1 donations
Naile & Felipe Kreiezmar
1 donations
Naomi, Jared, Joseph & Rae Bernheim
1 donations
Nessy & Neil Fausz
1 donations
Pam Werner
1 donations
Patty Donohue
1 donations
Rabbi and Judy Pearlson
Rafael & Rebeca Kravec
1 donations
Raquel Grosfeld
1 donations
Ray Parker/ Joe Solesky
1 donations
Rebeca & Jack Delaster
1 donations
Rebecca Zimmerman
1 donations
Reesa, Alexa & Riley Greenstein
1 donations
Regina and Ted Berman
1 donations
Rita & Saul Srebnick
1 donations
Rita & Troy Mollohan
1 donations
Roberto and Laurie
1 donations
Rodney Smith
1 donations
Ronald L Rowton
2 donations
Rosa & Sergio Zelcer
1 donations
Rosita Rok
1 donations
Rubens Family
1 donations
Ruth Srebrenik
1 donations
Salver Family
1 donations
Sandra, Rob, Emily and Abigail
1 donations
sara jove
1 donations
Sara, Dan & Aunt Val
1 donations
Sarita Rozencwaig
1 donations
Saul and Beth Kravec
Sheryl, Adam, Ross, Warren and Elinor
1 donations
Silent Auction
1 donations
Sima & Abraham Baikovitz
1 donations
Stephen R Schaffzin
1 donations
Stern Family
1 donations
Supporter of Teams Perez & Proffitt
1 donations
Suzette and Michael Fisher
1 donations
Suzy and Jordan Linn
1 donations
Sydney Bleich
Tal Levinson
1 donations
Tania & Isreal Lapciuc
1 donations
Tania & Robert Bassan
1 donations
The Adouth family
1 donations
The Bernstein family
1 donations
The Sobol Family
1 donations
The Weisburds
The wittels family
1 donations
Venice family
1 donations

View More