Kickin' it with Kaley
Hello Friends and Family,
I am walking in the PA Strollathon, one of Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome. This casual stroll has a fun and energetic festival atmosphere.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Kaley is now 10 years old. She has never walked, has only ever said a couple words, eats primarily through a tube in her belly, and needs maximum assistance in her daily activities. She has been hospitalized multiple times, takes medication to help prevent her every day seizures, and is having surgery this September to correct an almost 70 degree curve in her spine. Every day we hope for a cure that will help Kaley lead a more full life.
Your donation will help fund important research and family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!