Hi, I'm Laura! I plan on walking(I use that term loosly) in the 2020 Strollathon, Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome. Boy if I could say that out loud I'd need to celebrate with a beer! This casual stroll has a fun and energetic festival atmosphere. I've been every year, but left early once, cuz, well, you know... NAPS HAPPEN!
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. It hit me about this age too! The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns and more and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Yea, I deal with this but I don't let it define me! I am more that Rett Syndrome. I am fun, the Best Secret Keeper in my family hands down. I like long walks on the beach (um, really I'm and shade girl) a good Hallmark movie and mimosas! I am known to give the stink eye when things don't go my way! I will laugh right in your face if you have a full day ticket to ride the struggle bus of life! Mom says if I didn't have Rett Syndrome, I'd be the one she'd be bailing out of jail!
Your donation will help fund important research and family support. This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome! I wouldn't wish Rett Syndrome on anyone. Join me as we raise funds to Kick RS in the ____! Well Mom says, don't swear..."if she only knew!!!"
Please join me, (I go as fast as you can push my chair) or donate,(I love gathering your money on something so important), to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope! I promise not to pocket the funds for a mimosa!
If you don’t see me there, then I got too excited, rocketed out a seizure and am laying low, lounging in bed watching another Hallmark movie while my minions feed me peeled grapes and fluff my pillows! Yah, this event IS that exciting!
Let's do this!!