Hello past, present and future Posse members... I am turning 22 soon and I am asking for donations to the Rettsyndrome.org Strollathon to celebrate. The Strollathon is Rettsyndrome.org’s signature fundraising and awareness event, to raise money for essential research of effective treatments and to find a cure for Rett syndrome.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Your donation will help fund important research and family support. I have been a candidate for a couple drug trials, but ended up not qualifying for either. We have our eyes open for future opportunities. I take part in an annual Natural History Study and EEG Study to aid research progress.
This cause is very important to me and I appreciate your help as we fight for a cure for Rett syndrome and celebrate my 22ndyear!
Please join me or donate to my efforts to support Rettsyndrome.org in finding a cure! Your help is our hope!